Sjogrens world forum

Association Romande du Syndrome de Sjögren (ARSYS)
1800 Vevey, CH
Email Contact: info [at] sjogren [dot] ch (info[at]sjogren[dot]ch)
Website: www.sjogren.ch

Description:
L'association romande du syndrome de Sjögren a été créée en 2007. Elle est située en Suisse francophone et pourrait s'étendre aux autres régions linguistiques du pays.

Elle a pour but de:
mettre en contact les personnes atteintes
proposer une écoute, un soutien et des informations
contribuer à la recherche scientifique et médicale
faire connaître cette maladie au public 

Das schweizerische, französischsprachige Sjögren-Syndroms Verein wurde am 2007 gegründet. Es liegt in der französischen Schweiz und könnte sich durch die andere Sprachregionen des Landes erweitern.

Unsere Ziele sind:
Leute die bei Sjögren befallen sind, in Kontakt zu stellen
Unterstützung, Abhören, Informationen vorschlagen
Zur medizinischen Forschung beizutragen
Diese Krankheit mitzuteilen 

The Swiss Sjögren's Association was founded in 2007. It is located in the French-speaking part of Switzerland and could extend to the others linguistic regions.

Its goals are:

to connect people with this condition
to offer listening, su




















 





SjSWorld is...

an on-line
community
that offers those who have Sjogren's Syndrome a place to meet and share their experiences with others who are living with similar problems.  SjSWorld will focus on, but not limit ourselves to, the neurological manifestations of Sjogren's. We have spent over five years searching for reliable medical articles on the neurological problems associated with Sjogrens. We offer various ways to participate in our community, including E-Pals, discussion forums, instant messaging, live chats, e-mail lists, as well as articles and links.

If you have any good links to sites that help you understand and live with your disease, please let us know so we can add them to our link pages.

For a
PDF file about SjSWorld
to print or take to meetings, click here.

Please help support SjSWorld


When you purchase at Amazon through our links, a small portion comes back to SjSWorld, enabling us to "pay the bills" associated with the upkeep of our site. Thank you very much.

You will find a general search at the bottom of this page and specific links on our
book page
.



On Our Pages:


Something we frequently hear from patients is that while no one plans to get an autoimmune disease, there is some sense of relief when they finally get their Sjögren's diagnosis. After what might be years of uncertainty, they can finally put a name to their disease, and start taking the necessary steps to living a full life with Sjögren's.




Living with Sjögren's Patient Survey

The 
Living with Sjögren’s 
patient survey was conducted by The Harris Poll on behalf of the Sjögren’s Foundation. This survey was designed to gain insight into the variety and severity of what adult Sjögren’s patients living in the U.S. experience and how the disease impacts their quality of life. 

The Summary of Major Findings results sheds light on the experiences of patients, including physical symptoms, as well as the mental, emotional, and financial impact of the disease. The following data demonstrates the serious and systemic nature of Sjögren’s.

Living with Sjögren's Survey (PDF - 467 KB)




Battling Sjogren’s and Lupus: Symptoms and Similarities





“When you’re so tired it’s hard to explain but the quality of your life goes down. I’d go to the doctor and say I don’t feel good and they didn’t know why.”
– Venus Williams


Sjogren’s Syndrome is a serious condition that affects the quality of life. A Sjogren’s lupus combination presents a unique challenge.

Professional tennis star Venus Williams is ranked eighth in the world as a female tennis singles player. She’s known for playing hard and having a slight—but loveable—attitude on the court. Off the court, she’s an entrepreneur who owns her own interior design firm.

This constantly on-the-go woman also has a rheumatic condition. Diagnosed in 2011, Williams created a platform for Sjogren’s Syndrome. She drew attention to this little known autoimmune disease and shed light on symptoms people were experiencing as real life-altering problems.



What Is Sjogren’s Syndrome

Sjogren’s (SHOW-grins) Syndrome is when the body mistakenly attacks its own immune system—just like lupus. The two most common symptoms for a person with Sjogren’s Syndrome are dry mouth and dry, itchy eyes because the immun